We have a meeting set up with Marcus' doctors for Friday to discuss long term care plans, hopefully we can get an idea of what exactly is going on with him, and when we can expect him home. I honestly feel like I don't know anymore than I did when we first discovered something was wrong. He has test after test done and yet, there are still no answers. Can you tell I am frustrated?
Myles will also have a test in the morning to see if he is somehow aspirating his food, which may be causing his apnea episodes. We were also informed today that after doing an ultrasound on his head they found a tiny cyst, which is likely a level 1 brain bleed resolving itself. They believe that right after birth he had a tiny(pin point size) brain hemorrhage and that resulted in the cyst. His doctor said it was nothing to worry about now, she just wanted to let us know.
It is through God's grace alone that we live to see another day, and His grace is sufficient. Through all of our frustrations, hurts, and questions, we are not alone. Marcus is not alone. God is with us always, and that is what keeps me going.