Monday, November 22, 2010

I didn't make it to the hospital today, bringing the three oldest by myself is just not a task I felt up to today. Luckily, Steven gets off early all this week so I will be able to go tomorrow by myself and spend some quality time with the boys without distractions. I do love those times, when I can just sit and hold them, and look at them, quietly, concentrating only on them. I so wish they were home with us. I keep telling myself they will be soon.
Myles finished another bottle today! Yay Myles! If he keeps this up he will catch up to his big brother Lucas in no time. He is still doing great, just needs to take all his feeds from the bottle and he will be coming home. Oh happy day.
Marcus, my sweet little super hero is still fighting the good fight. I think it might be easier for me to list his updates~
  Hydrocephalus-the shut is keeping the fluid from building anymore, but it seems like we have hit a plateau on the actual drainage. His head measurements seem to fluctuate from day to day within a centimeter or two.
 Possible cleft palate- they mention this, but don't seem to be too worried about it for the moment.
 Sucking reflex- he is not showing any signs of having a sucking reflex, so they are just continuing the NG feeds, if and when he does show that he has developed the reflex, they will begin bottle feeding. However the dr has told us of the possibility that he will need a g tube inserted, if he does not.
 Lungs- he has been placed on diuretics to help with the fluid on his lungs. hopefully this will work and he can be taken off the oxygen.
 Hemi-vertebrae- no change/not an issue right now.
 Fused ribs- again, no change, not an issue right now.
 Hearing- he failed the hearing test again.
 Eyes- due to his inability to blink his left eye, he now has to have his eyes taped shut every night.
The girls are out of school this week for Thanksgiving break, which means a whole lot of bickering sisterly love is going on in the house(and the van, and the store, and the yard...) Thankfully Monday is almost over.  

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